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Showing posts matching the search for hospice

Caturday: A Cat Family Story

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  With rescued street cats (we have 6 of them, mostly older ones), the things inside them that are always unknown in the beginning start to show up as they grow older. Jack is the simplest and healthiest—and youngest. Just missing an eye. Happy Cat has recurring skin cancer. Wooper has IBS and asthma. Bobolink (Boulder) has feline AIDS. Simone si reacting positively to a new medicine, injected once a month, for arthritis; after 16 years she is now jumping up on the bed and snuggling in with me for the night, which she was unable to do with just cosequin. She also has two cysts that cannot be removed without surgery, and the vet considers the surgery at her age too risky so we do at-home management of the cysts. And then there is Snyezhka. Snyezhka survived breast cancer—discovered four years ago and in remission for the past two. We thought she was in good shape until four months ago when lung cancer struck. The immunotherapy did not work, and she has been just on Metacam, an NSAIDS. L

Cancer Diary: Caregiver Survival

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  Giving care to cancer patients or to anyone with a chronic, life-threatening, terminal illness is highly stressful. This includes hospice situations as well since hospice nurses and aides are only there for a few hours (if that) a week. Meanwhile, the loved one receiving the care may be experiencing deteriorations that are hard to understand (either as patient or caregiver).  While the medical professional generally does a good job, focusing on the needs of the patient, few in the profession give much thought to the caregiver (although some church programs [support groups] exist that do help).  As the patient deteriorates, the stress on the caregiver generally increases -- from a pending sense of doom, from escalating demands on time and knowledge (often inferior to the need), and decreasing lack of time for self-renewal. If you are a caregiver, find some help. Live-in assistance with care provides the most relief, but respite care can help as well. Don't wait until it is too lat

Cancer Diary: The Rally before Death

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As a follow-up to our blog post, "What is dying from cancer like," we share an MSM story that takes us the next step:  Hospice Nurse Reveals Unexplained Phenomenon Patients Experience Shortly Before Death (msn.com) For other posts about signs of cancer, click  HERE . For other Cancer Diary posts, click  HERE . Blog editor's note: As a memorial to Carl, and simply because it is truly needed, MSI Press is now hosting a web page,  Carl's Cancer Compendium , as a one-stop starting point for all things cancer, to make it easier for those with cancer to find answers to questions that can otherwise take hours to track down on the Internet and/or from professionals. The CCC is expanded and updated weekly. As part of this effort, each week, on Monday, this blog will carry an informative, cancer-related story -- and be open to guest posts:  Cancer Diary .   Sign up for the MSI Press LLC newsletter Follow MSI Press on  Twitter ,  Face Book , and  Instagram .   Interested in publ

Cancer Diary: (Not) Talking about Death

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  When Carl , MSI Press LLC graphic designer and co-founder, was dying from cancer of unknown primary , which has a very grim prognosis and no routinely accepted treatment, he wanted only hope -- that he would be in the 1% that has been reported to survive CUP at least for a year or more. He steadfastly avoided talking about death with his children, friends, and me. He resolutely did not want to talk to a professional of any sorts although he was willing to talk to a priest friend. Unfortunately, he was semi-comatose and near death before even one meeting could take place, given his frequent unplanned trips to the ER and regular trips out of town for chemotherapy. (The oncologist made an educated guess as to the possible primary cancer and gave two drugs, one a wide-sprectrum which generally does not work well because it is not targeted and the other targeted against his best-guess that the cancer started in the GI tract.) So, when the priest was finally able to connect with us, it was

Cancer Diary: Jimmy Carter

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  We interrupt our series of Cancer Diary posts to share what everyone already knows: cancer ( melanoma gone wild) has the upper hand now over Jimmy Carter , former US president and NFobel Prize winner. We salute his service to so many people of the world and his many accomplishments on behalf of peace and humanity. We wish him a humane experience on hospice and a peaceful last chapter in his life. For other Cancer Diary posts, click  HERE . Blog editor's note: As a memorial to Carl, and simply because it is truly needed, MSI Press is now hosting a web page,  Carl's Cancer Compendium , as a one-stop starting point for all things cancer, to make it easier for those with cancer to find answers to questions that can otherwise take hours to track down on the Internet and/or from professionals. The web page is in its infancy but expected to expand into robustness. To that end, it is expanded and updated weekly. As part of this effort, each week, on Monday, this blog will carry an i

Cancer Diary: Understanding, Accepting, and Coping with Stress

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  (diagram and contents of diagram from Beth Frates via Twitter) Literature gives suggestions for caregiver as if life is calm and caregivers are never angry or stressed out (implying that it is wrong to be so). The reality is that even in the best of circumstances, i.e. the existence of good support systems, caregivers do burn out . Thinking that other caregivers do not and that it is wrong to be angry or somehow even to instinctively respond with an unkind word or behavior is somehow is unique and makes one a bad person creates quite a guilt trip later.  In normal, circumstances, caregivers become sleep-deprived. Sleep deprivation leads NATURALLY to short tempers, frequent frustration, and, yes, bad decisions. Individuals' decisions that are made while sleep deprived cannot be thought of as intentional or well considered. At one point, I was so sleep-deprived that I fell asleep and drove off the road and into a field of cabbage (fortunately, I was not on a major highway), with m

Cancer Diary: Palliative Chemotherapy

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(Carl, returning from chemotherapy, getting out of car and onto chair lift)   An inescapable decision--and a potentially life-changing one--can be whether or not to provide chemotherapy at advanced stage 4 of cancer. Chemotherapy given when a cancer is incurable (and side effects are minimal, manageable, or acceptable) is called palliative chemotherapy .  As with nearly anything medical or existential, there are pros and cons.  On the PRO side are the intents (if actually realized) shrink the cancer reduce the symptoms (e.g., pain) improve quality of life prolong life On the CON side are the peripheral aspects uncomfortable and/or disconcerting side effects (the same that accompany any chemotherapy: nausea; neuropathy; in the case of some compounds, hair loss) "end of life" chemotherapy can feel like grasping at straws, especially when/if the intents are not all met or met at all (an emotional side effect of depressions, desperation, anger--it depends upon the person) difficu

When Pets Are Dying: Help in Understanding the Process and the Decisions

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  When my beloved Murjan was dying from cancer , I was desperate for information, but my husband was dying from cancer at the same time, which gave me very little time for seeking out answers. Murjan was almost 19 years old and had been on chemotherapy for three years. His vet did not know how to help him further, but she apparently did not want to admit that -- and subconsciously I did not want to admit that she did not know what to do and had essentially given up on him. I was unable to get timely appointments, or any appointments at all, even in the emergency room. We do not have any vets in town. I have to travel no matter what. Murjan's vet was located an hour north of us. To get help, I contacted other vets. A vet to the west of us recommended hydration, and so we stated hydrating Murjan every other day. His vet to the north allowed as to how that might help. But Murjan kept losing weight. He was down to 5 pounds (from 16 pounds) when he died.  Finally, a vet to the south of

Cancer Diary: Emotions and Cancer

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  I recently read a great blog post from Barbara Karnes, a hospice guru, who has done much to help dying patients and their families travel the path to death with equanimity. Her most recent blog post, " When our emotions blind us from what is happening ," rings true for cancer and any other fatal illness and is well worth reading. For other Cancer Diary posts, click  HERE . Blog editor's note: As a memorial to Carl, and simply because it is truly needed, MSI Press is now hosting a web page,  Carl's Cancer Compendium , as a one-stop starting point for all things cancer, to make it easier for those with cancer to find answers to questions that can otherwise take hours to track down on the Internet and/or from professionals. The CCC is expanded and updated weekly. As part of this effort, each week, on Monday, this blog will carry an informative, cancer-related story -- and be open to guest posts:  Cancer Diary .   Sign up for the MSI Press LLC newsletter Follow MSI Pres

Author in the News: MSI Press Author Julie Potter Interviewed on Grief Dreams Podcast

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From the site: Julie Potter is a certified social worker who has experience in home care, hospice, nursing homes and hospitals. For 20 years, she turned her expertise toward coordinating a spousal bereavement program, as well as a hospital-based wellness program for people 60 and over. She has recently released the book “Harnessing the Power of Grief”. In this podcast we talk about being a social worker, burnout in the field, starting a spousal bereavement program, the death of her parents, her book, and grief dreams of her parents. Click HERE to listen to the podcast. For more posts about Julie and her book, Harnessing the Power of Grief , click HERE .  

A Publisher's Conversation with Authors: Anatomy of a Successful Book (Commissioned Book)

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It is Tuesday. Time to tall turkey. Monday's madness is over, and Wednesday will take us over the hump, so Tuesday it is--for some serious discussion with authors. Tuesday talks mean to address authors in waiting and self-published authors who would like to go a more traditional route or who would at least like to take their steps with a publisher by their side Continuing with the samples of successful books, in this blog post I am including information of a book in the self-help genre; The Widower's Guide to a New Life by Joanna Romer. The book was recommended by US Review of Books and was selected as a finalist for the Book of the Year Award. How the book came into being: As editor, I proposed the book because I saw a market for it. I proposed the book to Joanna because she had written a similar book for Widows, which had sold well. I knew that Joanna had the writing and research skills to pull off a good book on this topic. Why the book sold: It filled a gap -- most of the