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Celebrating Rare Disease Month: You Might Be Surprised that Spina Bifida Is Considered a Rare Disease

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  Zhenya Yanovich If you live in the spina bifida world, it probably doesn’t feel rare at all. When it’s part of your daily life, your community, your routines — it feels everywhere. But statistically, spina bifida is classified as a rare disease , affecting about 1 in 2,700 births in the U.S. , and fewer in many other parts of the world. That disconnect — between lived experience and public awareness — matters. Spina bifida is a neural tube defect that occurs during early pregnancy, when the spine and spinal cord don’t fully form. It’s a lifelong condition, and like many rare diseases, no two experiences are the same . Some individuals walk independently; others use wheelchairs. Some have minimal medical needs; others require complex, ongoing care. Access to knowledgeable care can be a major challenge — especially outside major medical centers. Families in rural or remote areas may struggle to find providers experienced in spina bifida across adulthood, not just pediatrics....
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Publisher's Pride: Books on Bestseller Lists - When Liberty Enslaves - Aveta

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  Today's Publisher's Pride is  When Liberty Enslaves  by Jerry Aveta, which reached  #88 in campaigns & elections, #95 in U.S. abolition of slavery history, and #98 in abolition history of the US. Book Description There is a common experience between our experiences today and those before the Civil War many years ago.  The effect of the intersection of faith and politics during these two experiences has had on our elections and our governance is uncanny in their similarities.  Both times an election insurrection was stopped by the sitting vice president.  Both times had people of the same faith on both sides of the social issues of the day claiming God’s favor and willing to divide the nation over those competing positions. Part 1 of this writing focuses on the Civil War era and how liberty centered around the issue of equality.  Some people of faith believed all men were equal, some did not. Part 2 focuses on our present times and how libert...
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About MSI Press Books and You

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  MSI Press books have won national and international awards every year since 2012, when we first began submitting books to competitions. MSI Press authors’ books have won gold, silver, and bronze medals, honorable mention, best new voice, and legacy awards in more than 30 regional, national, and international book competitions. Check our  awards section . A number of our books have been among the top 100 Amazon  hot new releases , including several that have achieved #1 status. Every month, a number of our books can be found in the  top 100 bestsellers  in their various categories. Follow our blog and watch for “publisher’s pride” or sign up for our newsletter, where we announce these great books. Want to read a great book? Check out our  catalogue . Have a great book that needs to have some TLC? Nearly everyone has a story. Not every publisher will hold your hand until it materializes as an award-winning book and pay you generous royalties when it does. W...
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💜💙💚 Celebrating Rare Disease Day — February 28

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  So… what is a rare disease? A disease is considered rare when it affects a small percentage of the population — often fewer than 1 in 2,000 people . But here’s the twist: while each condition is rare on its own, rare diseases are common collectively . More than 300 million people worldwide live with one of over 7,000 known rare diseases . Rare doesn’t mean simple. Many rare diseases are: Genetic and lifelong Diagnosed late — or misdiagnosed for years Poorly researched or underfunded Lacking clear treatment pathways or cures And the challenges go far beyond medicine. People and families affected by rare disease often face: Difficulty finding knowledgeable doctors and specialists Long travel distances for care, especially in rural or remote areas Fragmented services and gaps in adult care Financial strain from medical costs and lost income Social isolation and misunderstanding Emotional burnout for individuals, parents, siblings, and caregivers For many families, life becomes a ...
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