MSI Press Blog

  Precerpt from  Raising God’s Rainbow Makers (Mahlou) I’ve always been a sound sleeper. Earthquakes, mortar fire, even sick children standing beside the bed—I slept through it all. But when Doah was born, everything changed. He had apnea attacks, day and night, and for the first six months of his life, there were no monitors leased to homes. No alarms. No backup. Just me. He slept beside me in bed, and every time he stopped breathing, I woke up. Instantly. No sound, no motion—just absence. My body registered the silence and responded before thought could catch up. I gave him CPR more times than I can count. I didn’t sleep lightly. I slept attuned . That’s the only word for it. That winter, there were eleven children in Pittsburgh with tracheotomies. Nine of them died. Only a ten-year-old and Doah survived. I believe he lived because of proximity—because my body recalibrated to his breath, because he was beside me, and because I refused to surrender to institutional neglect....

  Precerpt from Raising God’s Rainbow Makers (Mahlou) There was a gate agent. She called for staff. Once, twice—again. But no one came. The wheelchair sat waiting like a forgotten promise. Time ticked down. Our connection was slipping away. I pushed for her to let me push the chair, but that was against policy (likely liability concerns). I explained: Doah couldn’t walk the distance between gates although I think no explanation was necessary. She could see that he physically wouldn’t make it. He’s 4'7", with a short stride and a very, very, very narrow trachea. He tuckers out easily. We never plan on walking unless the gates are side by side. These were a quarter mile apart. She called again, checking her watch. Nada, nothing, no help. Finally, she nodded, “Okay. You can push.” With very little time left to make our next leg, I loaded my carryon onto Doah’s lap, strapped his bag to the back of the chair, and took the handles like a woman on a mission. We flew. Not just mo...

  Precerpt (excerpt from book prior to publication):  Raising God's Rainbow Makers  (Mahlou) Doah was a surprise (well, so were the other three) who quite fortuitously was predicted to be born in Pittsburgh, PA around Christmas Day 1977 -- semester break from my studies at near-by Renboro University. However, it was my grandson, Nathaniel, who ended up being born on Christmas day. Doah was born quite early, messing up both my teaching schedule and studies (and creating quite a lot of subsequent havoc due to all his medical issues -- 30 years later, he is still creating havoc, mostly due to his overly inquisitive and highly extroverted nature, coupled with some serious mental challenges). I don't remember all my labors, but I do remember Doah's. I went into labor while teaching a foreign language class! I managed to make it through the class (my stubborn nature, which does not always serve me well) and asked one of the students in the "college over 60" program to s...

  Peek into the future...and wait just a bit. Coming up some time this year is the publication of  Stealing Doah , a new book by Elizabeth Mahlou.  The first time. Doah, a CHARGE Syndrome baby, at six months, was losing weight daily while in the hospital, where the staff was insisting in the kind of care that the mother and pediatrician and already determined would result in failure to thrive. Then, the hospital proposed surgery as the best approach, and the pediatrician, with a little research, learned that the suggested surgery had 25% chance of success and a pretty high risk of death. (Years later, research would show that most surgeries had a 35% chance of resulting in long-term dependence on a life machine and a poor prognosis.) The hospital decided to seek custody from the courts (without informing the parents). Elizabeth found out because she read -- and understood -- all Doah's medical records, and the doctors had left a trail. Propelled by gut instinct, Elizabeth...