MSI Press Blog

   Excerpt from  100 Tips and Tools for Managing Chronic Illness  (Charnas) -- Tip #1. CALL ME DADDY   When I visit New York City, I usually stop by Levain Bakery on West 74 th street to buy their amazing chocolate chip cookies. The storefront is down a flight of steps and occupies a space the size of two coffins. Previously, this had never been an issue. But when visiting the city last October, every time I passed the bakery I saw people lined up for ten yards outside. On my last day of the trip, despite the cold weather and long lines, I decided to buy a couple of cookies. Several middle-aged women wearing transit uniforms stood in front of me in line. I asked them why the store suddenly had such long waits, and they explained that it now had a Facebook page.    The three transit workers and I chatted briefly as we tried to stay warm in the frigid air. One of the ladies, Darlene, had never eaten a cookie from the bakery before. Fed up with the wait, she declared to her friend,

  Today's back story is about the book, Living Well with Chronic Illness by Joanna Charnas From the author: In the mid to late 1990s, I was particularly sick with Chronic Fatigue Syndrome, an illness I’d lived with since I was nineteen. During these years, I had several run-ins with large bureaucracies, including the Massachusetts Department of Motor Vehicles and Harvard Community Health Plan, the largest HMO in the state. After I’d successfully obtained the services I needed, I’d tell my father about these confrontations, carefully leaving the distress they’d caused me out of the narrative. My father repeatedly responded, “You ought to write about that.” I was a Social Worker for a large AIDS service organization at the time, and my reply was always, “My experiences aren’t unique. My clients often encounter these same problems.” We had some version of this conversation for a couple of years. At the same time, I had an otherworldly feeling I should be writing something. I’d been p

  Excerpt from Tips, Tools, and Anecdotes to Help during a Pandemic by Joanna Charnas.  6. The Same Pep Talk   I’ve had the same chronic illness for forty years, and I continue to have occasional relapses that necessitate staying home for one to two weeks to recover. I’m frightened every time this happens, and with each episode, I give myself the same pep talk. I remind myself that, with one notable exception (when I had a relapse and a sinus infection simultaneously), I always recover within two weeks. I tell myself my illness isn’t progressive, and so this relapse will be like all of the others, and I’ll be able to resume my regular activities in at most two weeks. I remember that eventually I always return to a functional state, and all I need to do is take care of myself and I’ll be fine. These re lapses never get easier and they still frighten me, but giving myself a pep talk and remembering how well I’ve managed over the decades helps me get through them. Paperback co

  Now is a good time to take a few minutes away from running errands and other busyness and become reacquainted with MSI Press author, Joanna Charnas, who just updated her author page with new information, new photo, and nifty links. Joanna's four books ( Living Well with Chronic Illness , 100 Tips and Tools to Manage Chronic Illness , A Movie Lover's Search for Romance , and Tips, Tools, and Anecdotes to Help during a Pandemic ) have won a number of awards. You can link up with each of them on Joanna's updated page. For more posts about Joanna and her books, click HERE . Sign up for the MSI Press LLC newsletter Follow MSI Press on  Twitter ,  Face Book , and  Instagram .   Interested in publishing with MSI Press LLC? Check out information on  how to submit a proposal . Interested in receiving a free copy of this or any MSI Press LLC book  in exchange for  reviewing  a current or forthcoming MSI Press LLC book? Contact editor@msipress.com. Want an  author-signed copy  of th

  Excerpt from Living Well with Chronic Illness (Charnas) - Hard Decisions, Mistakes, and Choices What was I doing, sitting on the floor in a short, white skirt in the jury room of the Boston courthouse? I’d lost my mind. I’d been called for jury duty and badly wanted to serve. I thought if I dressed up a little, I might improve my chances. I hadn’t been feeling well, but I disregarded this in my desire to sit on a jury. I put on my knee-length skirt and sweater set and merrily set off.  The chairs in the jury-pool room were hard and uncomfortable. I sat there for a long time. After a couple hours, I began to feel lightheaded and weak. This should’ve been my clue to request dismissal from the jury pool. Instead, I thought I might feel better if I put my feet up, so I rested them on an empty chair. That didn’t help. I continued to feel worse and began having trouble sitting up. Other people were sitting on the floor, so in my short, winter-white outfit, I lowered myself and leaned again

  Joanna Charnas, author of several award-winning books , has provided the following guest blog post. My Father’s Influence on Managing Chronic Illness: Common Sense and Saliva By Joanna J. Charnas   I’m always striving to manage my multiple chronic illnesses effectively and with more ease, and less stress. My eighty-one-year-old father entered a nursing home this year due to worsening Alzheimer’s symptoms. Since his placement, I’ve considered his influences on my life and have particularly savored memories of my early childhood with him. As I contemplated this period, I began to appreciate the long-term effects his parenting style had on my health challenges.     Dad was a hands-on, no fuss parent. If I wet my bed in the middle of the night, I was instructed to wake him up, not my mother. He’d calmly help me into fresh pajamas, lay a large towel over the soiled linen that would be changed in the morning, and then tuck me back into bed. My occasional bed-wetting was drama f

  WHEN A MOTHER DIES YOUNG   By   Joanna Charnas   My mother died thirty years ago this week, eight days after her forty-ninth birthday, and she’s been on my mind as the anniversary of her death approaches. Mom’s cause of death was probably avoidable. Her will stated she didn’t want an autopsy, but because she died at home and had not been under the care of a doctor, the law required she have one. Her autopsy revealed her primary cause of death as pneumonia. Mom feared hospitals for reasons she never disclosed. She’d had a couple knee surgeries, and perhaps her hospitalizations after the operations traumatized her. About six months prior to her death, my brother and I discussed her frail health, which included diabetes, small airway disease, a bad back and knee, a bladder issue, and other ailments too numerous to list. I told him she would rather die at home if living meant a hospitalization. I had no idea then how prophetic this statement would be. In addition to her o

  Excerpt from A Mo vie Lover's Search for Romance - INTRODUCTION  This book recalls my search for love in my forties and fifties. For several years after my divorce at forty-one, my love life was slim to none. I focused on my career, buying my first home, and settling into it. I dated sporadically, but none of the men I went out with were particularly memorable. I didn’t care. My love life wasn’t my priority. I went to work and to the movies, and I was fine. Then, I saw The Pianist in late 2002, and the performance of Adrian Brody as the main character awakened something in me. My crazy post-divorce, romantic life began with that film. Movies and men became the focus of my wild middle-age dating life. Initially, I fell sway to three ridiculous crushes: first, Adrien Brody; next, my father’s friend, twenty-five years my senior; and finally, my Adonis-like washing machine repairman. As I pondered these crushes, they reminded me of scenes and characters from the thousands of movies

  Joanna Charnas recently won the Pinnacle Books Achievement Awards' memoir category for her book, A Movie Lover's Search for Romance . A Movie Lover's Search for Romance  has also received the following awards: Hollywood Book Festival Honorable Mention Book Excellence Award finalist For more posts about Joanna and her books, click HERE . For more posts about Pinnacle Book Achievement Award winners, click HERE . Sign up for the MSI Press LLC newsletter  here  or on our  home page . Follow MSI Press on  Twitter ,  Face Book , and  Instagram .   Interested in publishing with MSI Press LLC? Check out information on  how to submit a proposal . Interested in receiving a free copy of this or any MSI Press LLC book  in exchange for  reviewing  a current or forthcoming MSI Press LLC book? Contact editor@msipress.com. Want an  author-signed copy  of this book? Purchase the book at 25% discount (use coupon code FF25) and concurrently send a written request to orders@msipress.com

  excerpt from 100 Tips and Tools for Managing Chronic Illness (Charnas) -- Chapter 3. FACING SETBACKS   Tip #22. MOVIES FIRST   On a recent Saturday morning, I desperately wanted to go to the movies, but I had a long list of chores and errands I’d convinced myself I should finish first. I often worry that if I don’t accomplish tasks when I plan them, they won’t be done in time. That morning I decided they all could wait. Sometimes when you live with chronic illness and its complex demands, you need to step back from the daily grind of managing your illness and simply enjoy life. After the bargain matinee, I left the theater ready to face my long list of chores. When we don’t relax or take time to enjoy our lives when we’re able to, we run the risk of losing out on some of life’s pleasures, which are already frequently circumscribed by illness. Creating balance between what we must do to remain functional and enjoying our lives is a constant challenge. Don’t forget to do w