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Showing posts with the label Shenan Leaver

🌟 April Fool’s Day: A Little History… and a Lot of Shenanigans

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  April Fool’s Day has been around for centuries, though no one can quite agree on where it began. Some trace it to the 16th‑century switch from the Julian to the Gregorian calendar, when people who still celebrated New Year’s in late March were teased as “April fools.” Others point to spring festivals across cultures—times of playful chaos, role‑reversal, and harmless trickery. However it started, the spirit has stayed the same: one day each year when the world gives you permission to be delightfully ridiculous. In our house, though, April Fool’s Day doesn’t just happen . It is anticipated. It is engineered. It is practically a season. And the reason is simple: my son Shenan. Shenan is a prankster by nature and by name. He even owns a shirt that reads, “If I Shenan once, I’ll shenanigan.” This is not an idle threat. This is a personal mission statement. So it’s no surprise that April Fool’s Day is his favorite holiday. While most people start thinking about jokes on March 31...

Top 10 Blog Posts in February 2026: #10. Celebrating Rare Disease Month: Bet You've Never Heard of CHARGE Syndrome!

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  Most people haven’t heard of CHARGE Syndrome (including doctors who say, "This is my first patient with CHARGE")— and that’s part of the challenge. CHARGE syndrome is a  rare genetic condition , affecting roughly  1 in 10,000 births . It’s complex, lifelong, and looks different for every person who has it. The name  CHARGE  comes from a pattern of medical features that can include differences in the  heart, hearing, vision, breathing, growth, balance, and development . Because CHARGE is so rare,  finding knowledgeable medical support can be incredibly hard  — especially for families living in  rural or remote areas . Many parents spend years educating doctors, coordinating dozens of specialists, and traveling long distances just to access basic care. Finding trained caregivers, therapists, or educators who truly understand CHARGE can feel nearly impossible. And CHARGE doesn’t end with childhood. Across a lifetime, individuals with CHARGE ma...

Celebrating Rare Disease Month: Bet You’ve Never Heard of CHARGE Syndrome!

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Most people haven’t heard of CHARGE Syndrome (including doctors who say, "This is my first patient with CHARGE")— and that’s part of the challenge. CHARGE syndrome is a rare genetic condition , affecting roughly 1 in 10,000 births . It’s complex, lifelong, and looks different for every person who has it. The name CHARGE comes from a pattern of medical features that can include differences in the heart, hearing, vision, breathing, growth, balance, and development . Because CHARGE is so rare, finding knowledgeable medical support can be incredibly hard — especially for families living in rural or remote areas . Many parents spend years educating doctors, coordinating dozens of specialists, and traveling long distances just to access basic care. Finding trained caregivers, therapists, or educators who truly understand CHARGE can feel nearly impossible. And CHARGE doesn’t end with childhood. Across a lifetime, individuals with CHARGE may face: Multiple surgeries and ong...