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Showing posts with the label caregiver burnout

Cancer Diary: Spouse Caregiver Burnout

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  I recently came across a wonderful post on Caring Bridge , a site that helps critically ill people and their caregivers establish to communicate with family members (so as not to have to repeat the same information many times). It also has a lot of other ways of providing support and supportive information. Among that information I discovered this great piece that I wish I had seen when I was the stressed-out caregiver for my husband and MSI Press typesetter, Carl Leaver .  Here is the post. Following the post is a list of 8 tips for managing spouse caregiver burnout -- and boy, are they great, starting with #1, "understand that your feelings are valid." You can read the tips HERE . What Is Spouse Caregiver Burnout? Spouse caregiver burnout is a state of exhaustion and stress that can affect people who provide ongoing care to their partner. Also called caregiver stress or caregiver fatigue, it’s something that can affect someone physically, mentally and emotionally. Unfortu

Cancer Diary: Sleep Deprivation and Seeing Red

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  In one Star Trek episode, the crew cannot enter REM sleep -- and as a result, violence emergences. That episode is based on scientific research. And it explains a lot about caregiver burnout  and anger . When a spouse or other family member suffers from cancer, needs for care do not occur only during waking hours. Often, it feels like 24/7, and a family member who serves as caregiver can find himself or herself unable to react calmly in the face of chaos and immense stress . Sleep provides a time to renew emotional balance. Sleep deprivation leads to deprivation of balance, calm, perspective--and ultimately, emotional control. Here are some details about the relationship between sleep deprivation and anger  from the National Institute of Health. Here are some details about the relationship between sleep and mood from Harvard University research. And here is some evidence of the relationship between anger, aggression, hostility, and sleep deprivation , also from NIH.  Click  HERE  

Cancer Diary: Understanding, Accepting, and Coping with Stress

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  (diagram and contents of diagram from Beth Frates via Twitter) Literature gives suggestions for caregiver as if life is calm and caregivers are never angry or stressed out (implying that it is wrong to be so). The reality is that even in the best of circumstances, i.e. the existence of good support systems, caregivers do burn out . Thinking that other caregivers do not and that it is wrong to be angry or somehow even to instinctively respond with an unkind word or behavior is somehow is unique and makes one a bad person creates quite a guilt trip later.  In normal, circumstances, caregivers become sleep-deprived. Sleep deprivation leads NATURALLY to short tempers, frequent frustration, and, yes, bad decisions. Individuals' decisions that are made while sleep deprived cannot be thought of as intentional or well considered. At one point, I was so sleep-deprived that I fell asleep and drove off the road and into a field of cabbage (fortunately, I was not on a major highway), with m