MSI Press Blog

  I recently told a pulmonologist that Doah—now nearly forty‑seven—entered this world with a zero percent chance of survival stamped on his chart. That was the official medical verdict. The unofficial one was harsher: the doctors called me immature for refusing to accept that he would die. They insisted that hope was denial, that advocacy was naïveté, and that my unwillingness to surrender him to their predictions made me the problem. Their solution was to remove him from me entirely. They tried to take custody so they could perform experimental procedures his own pediatrician warned were dangerous and unlikely to help in any meaningful way. The message was unmistakable: If you won’t give up on him, then we will take him from you so we can. I did what any mother who knows her child better than a prognosis would do. I removed him from the hospital, gathered what little we had, and took him out of state. The doctors we found there were not optimistic either—but they were willing ...

    The following excerpt comes from Overcoming the Odds, edited by Carl Leaver\. GUIDELINES: TWO RULES FOR SURVIVAL Gratitude 1. When you get up in the morning, express gratitude that you had your husband as long as you did. You can do this by writing down some thoughts in a journal, saying a prayer, or just thinking grateful thoughts. 2. Talk about your loved one with friends, mentioning particularly nice things your husband did for you and others. 3. Make a list of everything that you have to be grateful for. Post the list in a conspicuous place: near your computer, on the refrigerator, or in a journal you use every day. 4. Take yourself out to lunch at a favorite place, and feel grateful to be lunching there. Savor the food; admire the ambiance. 5. Go to a movie that you know will touch you. Be grateful that you can still be touched. Do Something for Someone Else 1. Buy a little gift for one of your husband’s relatives. Sisters, brothers, even cousins may be hurting as m...