MSI Press Blog

As with Carl, many people have "signs" of cancer that can be interpreted either as something else quite mild or dismissed entirely as just a bad day or maybe I ate something bad yesterday. Otherwise quite healthy people simply ignore them as an annoyance. (Before cancer, Carl was sick just one day in his life -- 50 years earlier he threw up, once, on the lawn, from unsuspectingly drinking stagnant water the day while carrying out his Forest Service employee duties, Seriously. Never again did he ever throw up even after three rounds of chemotherapy, but he died, healthy, from cancer!)  This is the insidious nature of cancer. Often, you just do not know you have it because the signs are so innocuous until it has taken over your body and is in the winner's circle -- and you have an incredibly difficult battle to get your body back -- and many people lose that battle every single day. This is especially true of "toilet information." Change in bowel movement is prett

  March is National Colorectal Cancer Awareness Month. Being aware of the dangers of colon cancer, how widespread it is, and how fairly easily it can be identified and treated at early states is important to everyone's long-term health because colorectal cancer can attack anyone. Here is a guide that can help: Guide to Colorectal Cancer Carl Leaver for whom the CCC is named and maintained died of cancer of unknown primary. How oncologist believed (no evidence when it comes to CUP) that the cancer started in the colon.  I, his wife and MSI Press LLC managing editor, was found cancerous polyps through a home colon cancer test, ordered because of an observed change in bowel behavior, that led to a much-earlier-than-planned follow-up colonoscopy (5 years instead of 7-10 years after the first colonoscopy that had yielded no concerns). That led to several siblings revealing the same state and that they were on short-term follow-up colonoscopy schedules. Carl blew off his scheduled colono

  Colorectal cancer has a life expectancy of 4-6 months if discovered in stage 4. If discovered in stage 1-2, life expectancy is 5 years. (Note: Carl's Cancer Compendium provides longevity statistics for a wide range of cancers.) So many people die from colon cancer and colorectal cancer after brief periods of chemotherapy, if that, a imperative exists for watching for early signs of cancer is not heeded (or in some cases, they are simply missed or misinterpreted). I speak from personal experience because although Carl died from cancer of unknown primary ( CUP ), his oncologist was convinced that the original cancer was gastro-intestinal in nature although the colon was clear of the cancer by the time the cancer had reached stage 4 (which can happen in cases of CUP). So, assuming the oncologist was right about the original cancer, did Carl actually survive the 5 years without knowing it? Discovery at late stage does not mean the cancer arrived late stage -- it may have taken mon

   54-year old Jason Maman put off checking out the reasons for his stomach pain for a year. It turned out to be stage 3 colon cancer. Read the article here .  This is a bit different from the delayed diagnosis described in last week's (May 13) Cancer Diary blog post. In that case, the patient knew something was wrong; it took too long for doctors to take her seriously and to get an accurate diagnosis. Carl , too, put off getting a diagnosis for something he thought was just stomach pain . He consulted "wisely" (right?) with our daughter who had had her gall bladder removed years earlier when he thought it might be his gall bladder. He decided to just monitor it for a while and see if it got worse. He adapted his food intake for gall bladder management. It did not work. To his defense, this occurred as covid was winding down, and doctors in our area were not seeing patients in their offices, just telehealth -- and his long-term doctor had left when the pandemic started to

Carl always fought obesity. He was at the very limit for body donation (his desire) when he died. A few months before being diagnosed with five kinds of cancer (aggregately known as cancer of unknown primary), Carl lost 50 pounds. As can be seen in the photo above, he was pretty proud of that. He always wished he could weigh less but was never willing to put in the effort to lose weight. Our daughter-in-law's antennae went up when she asked him what he had done to lose the weight, and he responded, "Nothing." That indeed should have tipped us off to a massive problem. But it was covid, and celebrating small things, like losing weight (even without effort) seemed a good thing, not a bad thing. Two months after that picture was taken, Carl fell, was taken to the hospital, and got the cancer diagnosis -- way too late to do anything about it. It is no surprise, then, that my doctor (Carl's former doctor) was concerned when between two visits (four months apart), I had los

We love grilling. Carl had quite a reputation for grilling hamburgers, hot dogs, salmon, and more, a tradition carried on by his children (son Shawn in the picture) and grandchildren (granddaughter Neela in the picture). Friends, family, and neighbors always loved coming by for Carl's BBQs.  Then, Carl fell and was diagnosed with stage 4 Cancer of Unknown Primary , which is an aggressive cancer, leaving little time to cope with rapid changes , let alone grilling or any kind of final fun. His oncologist thought that the primary probably was in the GI tract. Carl had skipped his colonoscopy (no one should ever do that). He was treated with a generic mix of chemicals as well as a mixture for colorectal cancer. It was too late! What we never realized during all those years of grilling was the potential connection between grilling and cancer. Had we known that, maybe Carl would have grilled less or differently. Perhaps he would have been more diligent about getting his colonoscopy. By

  Carl did not die of colon cancer. He might have had it, but his colon was clean by the time tests were undertaken to find his primary. They never did. The died of cancer of unknown primary (CUP), but there are theories that say that CUP results when very strong immune systems knock out the primary, which then escapes to other organs. In Carl's case, five other organs were under siege, but the oncologist always felt that the cancer had started in the GI tract though it could not be seen there by the time Carl was diagnosed. Carl also did not have a colonoscopy. His perception of it as unpleasant, and his imagination of it as just too uncomfortable, especially the preparation, kept her from scheduling it -- likely to his eternal detriment. That given and said, I was fascinated to find a wonderful little article about how to make it all more tolerable. Short, illustrated, helpful. Read it HERE . For other Cancer Diary posts, click  HERE . Blog editor's note: As a memorial to Car

  Earlier, Cancer Diary reported on the death of Kirstie Alley due to colon cancer. Now another well-known person has died from it: Pelé.  Carl Leaver , MSI Press typesetter and co-founder, died of Cancer of Unknown Primary ; however, his oncologist suspected that it started as colon cancer (though, typical of CUP, the colon was clean by the time CUP was diagnosed at advanced Stage 4). Carl had skipped his colonoscopy, not with a great deal of thought but just because he did not want to be bothered with it at the time. Advice to everyone: be bothered with it! Read about the symptoms of colon cancer and issues of colonoscopies HERE . There is also a good deal of information about colon cancer at Carl's Cancer Compendium (cancers are listed alphabetically). Click HERE for more Cancer Diary posts. Click HERE for more posts about colon cancer. Blog editor's note: As a memorial to Carl, and simply because it is truly needed, MSI Press is now hosting a web page,  Carl's Cancer

  Carl Leaver , to whom Cancer Diary and the CCC are dedicated, has a lookalike son. Their interests and behaviors are essentially the same. Carl's son CB has his same build -- except that he is a foot shorter, part of the CHARGE Syndome with which he was born. Carl died of Cancer of Unknown Primary; however, his oncologist believed (gut instinct plus experience) that it started in the colon. Carl could have had regular colonoscopies, but he foolishly chose not to because he was super-healthy. (The only time he was sick enough to vomit was one day when he was 21.) Unfortunately, he died super-healthy. Never vomited again, ever. Never felt sick until cancer wore out his energy and his muscles and then his thinking capacity. So, lesson learned? CB gets regular colonoscopies? His siblings do, and his brother has had some polyps removed. CB, however, cannot. As his gastroenterologist says, as a result of CHARGE Syndrome, CB has a 35% chance of dying from any procedure that requires int