MSI Press Blog

  Today would have been the 54th anniversary for Carl  and me. Last year, I spent it in the cemetery with Carl, as I did the year before. This year I cannot because I am in Bandung, Indonesia, but perhaps that is just as well.  On our 51st, he was alive, but not well. Three weeks earlier, he had fallen, been xrayed, and found to be in the advanced stage of cancer of unknown primary , with liver, lungs, bones, and stomach completely riddled with cancer cells, blood clots in his lungs, and his bones throwing off cells to create hypercalcemia, the reason he had fallen. It was a difficult time. We were just coming out of the covid months. We brought our CHARGE Syndrome son CB who had been living in group homes for 20 years home when they were not careful with protection from covid. At the same time, our spina bifida daughter, who lives about 30 miles to the south of us, independently, with a county-provided part-time aide lost her caregiver to surgery and no one wanted to take over, given

  A recent article brought back a raw memory:  Dad died 44 days after his cancer diagnosis. He never received the chemo he was promised (msn.com) . That was pretty much what Carl experienced. He fell February 23, was diagnosed with late stage 4 cancer in five organs, and was set up for testing to determine the primary (never was found, and the diagnosis became cancer of unknown primary ). He had to wait to begin chemo until he could receive the second covid shot (remember back then?). Once all the tests and shots were over, it was the end of June. He received three rounds of chemotherapy before falling again on July 23, at which time, tests showed that chemotherapy was not working. From that point, it was only 23 days until he died. It felt like chasing after water as it was flowing over a waterfall. No way to keep up. Would those original 4-5 months have made a difference had he started receiving chemotherapy earlier? It is impossible to know. Could those early tests have been pushed

  It is Tuesday. Time to tall turkey. Monday's madness is over, and Wednesday will take us over the hump, so Tuesday it is--for some serious discussion with authors. Tuesday talks mean to address authors in waiting and self-published authors who would like to go a more traditional route or who would at least like to take their steps with a publisher by their side. Today's topic looks at how the concept of, goals for, and conduct of book tours have changed over time. It also looks at whether a book tour is a good idea, based on likely % of return on investment. The essence of the morphing has been from in-person to virtual, part of that in keeping with the Covid experience. In person Most authors think of the pre-covid take-a-trip from town to town for, generally, bookstore signings. That did work once upon a time, but mostly for people with household names. Previously unpublished authors often have romantic notions, completely untied from reality, that publishers will underwrit

(graphic by Casey Johnson, She's a Beast) I love the output of "She's a Beast" website and newsletters. Perhaps the best to date is a recent discussion of how to build a home gym. Everything they say about how to build a gym in " How to Set Up a Home Tinygym ," I have found to be right on. I realized early on when I was doing my ninja training that got derailed by covid shutdowns and family tragedy (and discovered reality) that I would need an at-home gym for a number of reasons: No gym was close by so going in several times a day was out of the question, but at home any time I go past the pull up bar, I can make some pullup attempts. When I am listening to the evening news I can grab some weights and work out while watching. On days when I had full work requirements that would not let me off for any amount of time, I had the gym at home where I could work out. (Disclosure: Much of my work is at-home, so I have an advantage there.) When the gym closed for co

(photo by Frank Perez) It is Tuesday. Time to tall turkey. Monday's madness is over, and Wednesday will take us over the hump, so Tuesday it is--for some serious discussion with authors. Tuesday talks mean to address authors in waiting and self-published authors who would like to go a more traditional route or who would at least like to take their steps with a publisher by their side. Today's topic is about book launches. A book launch, planned and carried out well, is a great opportunity to introduce and market your book to a large number of people. So, what are the ways books can be launched? What is the best way to launch a book? What are the benefits and risks of various kinds of book launches? So, let's take each question separately. What are the ways in which you can launch your book? A typical launch for a high-powered author is a tour of bookstore signings; a typical launch for a low-powered author is a book signings at one, perhaps two, local bookstores.  High-powe

  excerpt from Life, Liberty, & Covid-19 SELF-COMPASSION When we blame others with such vehemence, it is a good indication of a hidden, unacknowledged self-blame. We used to say as kids, “It takes one to know one.” Another way of saying it, “If you spot it, you got it.” That is called projection, as we discussed regarding prejudice. What we hate in others is what we cannot tolerate in ourselves but disown. We get rid of what we despise in ourselves by casting it onto others and then berate them for it. There is only one way to escape the blame game. Beginning with ourselves, we give up the harsh self-judgment. The first step in self-compassion, forgiveness, is to become attuned to our own suffering, which has several aspects: Losses During the pandemic, we suffer so many unavoidable losses. Our lives have been turned upside down. Most tragically, family members may have become infected and died. We could not be by their sides during their sufferings because of the quaranti

  As a child, I imagined that the year 2020 would feature flying cars, magically calorie-free food, teleportation, and pets that were actually robots. What the actual year 2020 has brought is a complete dumpster fire. At the time of writing, we’re only halfway through, and so far we have experienced increasingly dangerous political divisions, major earthquakes, civic unrest, actual locusts (really), the deaths of cherished public figures, continuing protests for racial equality, massive fires, and murder hornets. We can’t forget about the murder hornets. Oh yes, as if all of this wasn’t already enough, we’re also facing an unprecedented global health crisis in the form of the coronavirus, otherwise known as COVID-19. The WHO first reported a novel virus on January 5, 2020, after a series of cases in Wuhan, China originally thought to be pneumonia proved to be from the same strand of a new disease. [1] The first cases outside China were reported on January 13. On January 20 the U

photo: care.com When Carl was dying from Cancer of Unknown Primary , we were facing the question of how to handle his 24/7 needs for care. Everything was compressed during that time -- decisions had to be made without the time to reasonably research them and rationally make them. (That is the primary reason MSI Press established Carl's Cancer Compendium : to pull together a lot of the basic, time-consuming research that could be accessed with just a couple of clicks).  When we decided to try chemotherapy, he became not eligible for hospice care. IMHO, there is a problem with the binary system behind hospice availability. Decide to work on dying - hospice is available. Decide to work on living -- you're on your own. Yet, this is exactly the time that patients and their families need help; being on your own is certain to result in a range of emotions, including anger and frustration, as well as poorly informed decisions, burnout from family member who cannot do everything and be