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Showing posts with the label chronic illness

Daily Excerpt: Living Well with Chronic Illness (Charnas) - decision, mistakes, and choices

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  Excerpt from Living Well with Chronic Illness (Charnas) - Hard Decisions, Mistakes, and Choices What was I doing, sitting on the floor in a short, white skirt in the jury room of the Boston courthouse? I’d lost my mind. I’d been called for jury duty and badly wanted to serve. I thought if I dressed up a little, I might improve my chances. I hadn’t been feeling well, but I disregarded this in my desire to sit on a jury. I put on my knee-length skirt and sweater set and merrily set off.  The chairs in the jury-pool room were hard and uncomfortable. I sat there for a long time. After a couple hours, I began to feel lightheaded and weak. This should’ve been my clue to request dismissal from the jury pool. Instead, I thought I might feel better if I put my feet up, so I rested them on an empty chair. That didn’t help. I continued to feel worse and began having trouble sitting up. Other people were sitting on the floor, so in my short, winter-white outfit, I lowered myself and leaned again

Guest Post for Father's Day from Joanna Charnas: My Father's Influence

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  Joanna Charnas, author of several award-winning books , has provided the following guest blog post. My Father’s Influence on Managing Chronic Illness: Common Sense and Saliva By Joanna J. Charnas   I’m always striving to manage my multiple chronic illnesses effectively and with more ease, and less stress. My eighty-one-year-old father entered a nursing home this year due to worsening Alzheimer’s symptoms. Since his placement, I’ve considered his influences on my life and have particularly savored memories of my early childhood with him. As I contemplated this period, I began to appreciate the long-term effects his parenting style had on my health challenges.     Dad was a hands-on, no fuss parent. If I wet my bed in the middle of the night, I was instructed to wake him up, not my mother. He’d calmly help me into fresh pajamas, lay a large towel over the soiled linen that would be changed in the morning, and then tuck me back into bed. My occasional bed-wetting was drama f

Daily Excerpts: Excerpt from 100 Tips and Tools for Managing Chronic Illness (Charnas): #11. A Slice of Canine Heaven

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  Today's daily excerpt comes from 100 Tips and Tools for Managing Chronic Illness by Joanna Charnas.  11.  A SLICE OF CANINE HEAVEN             When Emme died, I struggled to find the right words of condolence for her owner, my colleague Matt. I finally told him that rarely are my expectations of great things completely fulfilled, but my day with Emme exceeded my hopes and was a joy. Emme was a 170-pound Great Dane who spent one hot summer day, per Matt, “babysitting” me when I was homebound with a sinus infection. I’d been sick in June with a similar illness, and when I returned to work, Matt offered to bring Emme to my home the next time I felt ill. He knew I loved Great Danes but couldn’t own one because of my chronic illness. So, during my second week-long bout that summer with sinus issues, I gave Matt a call. At six-thirty the next day, he arrived with Emme and the largest dog bed I’d ever seen.  After an hour of anxiously checking my front door, Emme settled in. She was th

Cancer Diary: MSI Publications Related to Cancer and the Experiences of Life-Threatening Illness and Dying

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MSI Press, over the years, has published a number of books that focus on cancer, include cancer, or discuss related items such as living with chronic illness, caregiving, dying, and grief. Here are some of them. All of these books can be found on the MSI Press website  HERE .                 For more Cancer Diary posts, click HERE . To reach the MSI Press catalogue, click HERE . Note that the coupon code FF25 will gain you a 25% discount on any book, including those on sale. Blog editor's note: As a memorial to Carl, and simply because it is truly needed, MSI  is now hosting a web page,  Carl's Cancer Compendium , as a one-stop starting point for all things cancer, to make it easier for those with cancer to find answers to questions that can otherwise take hours to track down on the Internet and/or from professionals. The web page is in its infancy but expected to expand into robustness. As part of this effort, each week, on Monday, this blog will carry an informative, cancer-r

Author in the News: Owl Tail Turns Five Interviews by Joanna Charnas into a Podcast

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  Now you can hear all five interviews of Joanna Charnas by the hosts of OwlTail at the same time! They have been pieced together into one podcast HERE . OwlTail has some very interesting programming, including interviewing the likes of former president Obama and Elon Musk. Well worth following! Read more posts that include links to writings, interviews, and podcasts by Joanna Charnas, including her four books,  HERE . American Book Fest Best Books Awards Finalist 2917 2018 Book Excellence Award Hollywood Book Festival Honorable Mention 2021 a pandemic series book

Introducing Dr. Emily Reeves Graves, MSI Press Author

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Dr. Graves (Ph. D., Texas Tech University) is an education expert, well-published in peer-reviewed journals and textbooks. During pregnancy, she suffered complications due to rheumatoid arthritis (RA) that resulted in kidney failure. After personally experiencing the traumatic change from career woman to a chronically ill, stay-at-home mom, she has actively cultivated strategies to balance her ongoing health battles with her desire to be a great mother and wife while staying professionally active. Her book,   How to Be a Good Mommy When You’re Sick: A Guide to Motherhood with Chronic Illness , gained the attention of   Library Journal , which reviewed it positively. Other positive reviews followed. For other posts about Dr. Graves and her book, click HERE .

Advice for People Coping with Illness - Five Very Helpful Books

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Being sick is the pits! The authors of these recommended books know. They are not only experts; they have also lived the experience. Read one, read them all! They are available at discount from MSI Press webstore (use code FF25 for a 25% discount). All are available on Kindle. How to Be a Good Mommy When You're Sick Soon after receiving her Bachelor's Degree, Dr. Emily Graves was diagnosed with Rheumatoid Arthritis and given a prognosis that she would be confined to a wheelchair within ten years. Shortly thereafter, pregnant with her first and only child, Emily's kidneys shut down. Thus, began a new chapter in Emily's life: balancing chronic illness, motherhood, and the professional ambitions that had caused her to excel as an academic and meet her husband. Today she is still fighting chronic illness, but she has found some answers as to how to manage that fight while being a good mother and spouse and continuing to pursue her professional ambitions. In this

News for Arthritis Sufferers

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The Arthritis Coalition tells us they are working on a national initiative to raise awareness of those suffering from arthritis. Information can be found here . For suggestions on how to live a productive life with arthritis, see MSI Press author Emily Graves' book, How to Be a Good Mommy When You're Sick .

My Frenemy--The Dishwasher (guest post from Joanna Charnas)

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Joanna Charnas, author of Living Well with Chronic Illness and 100 Tips and Tools for Managing Chronic Illbess, talks in this post about the common everyday things that can become really serious issues for those who are ill. Read her article in yoursnews here . Read more articles from Joanna here , along with her an interview with her.

Finding Joy Half a World Away: Traveling with Chronic Illness (guest post from Joanna Charnas)

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Joanna Charnas, author of Living Well with Chronic Illness and 100 Tips and Tools for Managing Chronic Illness,   at first thought that she culd not travel from San Diego to New Delhi, given her state of chronic illness  So, she turned down multiple invitations from a friend in India to visit. Then, her nephew married a young woman from Delhi, and the compelling desire to see their wedding took over in spite of concerns about the level of medical care available in India, And she found -- joy in the experience. Read about her experience in her post in yoursnews.india: You Will Dance: Finding Joy in an Indian Wedding . Read more posts by and about Joanna Charnas here :

Excerpt from How To Be a Good Mommy When You're Sick (Graves): Introduction, My Story

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Introduction: My Story When women with Rheumatoid Arthritis (RA) get pregnant, their RA goes into remission. At least, that’s what my doctor told my husband, Robert, and me when we went in to discuss the possibility of having a baby. At that time, we both were professors with busy careers. I was 28, and, according to my doctors, my RA was on “cruise control.” Thus, we were given a big “thumbs up” from the medical community to get pregnant. I would not trade our son for the world, but, boy, were they wrong! There was no remission for me, not unless remission means running head first into kidney failure and an abrupt pause in my career. After many months of discussions with baffled doctors, biopsies, and blood tests, I was diagnosed with Essential Mixed Cryoglobulinemia Type II—a complication of my RA that was causing kidney failure. I was officially the complicated, rare case “only found in medical journals.” In other words, my bewildered doctors and nurses all but labeled

Book Review: How To Be a Good Mommy When You're Sick

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"I now know what going from 100 to nothing and working back up again slowly actually feels like. A rollercoaster? Yes, but taking it one day at a time with family support and some tips from someone who has always insisted on learning the hard way just might make your ride a bit smoother." Suffering from Rheumatoid Arthritis, a progressive autoimmune disease, college teacher Dr. Emily Graves was told the disease would go into remission while she was pregnant. That was the good news; the bad news was, it wasn't true. In fact, she suffered kidney failure, and her son William was delivered by C-section when she was only 28 weeks pregnant. The better news is that she slowly recovered and now, with a typical toddler and a supportive spouse, she offers this guide for others. She makes practical suggestions: how a sick mother can rest, prepare meals, manage a healthy regimen for everyone in the family, make schedules, deal with taking multiple medications—while being a m