MSI Press Blog

Being sick is the pits! The authors of these recommended books know. They are not only experts; they have also lived the experience. Read one, read them all! They are available at discount from MSI Press webstore (use code FF25 for a 25% discount). All are available on Kindle. How to Be a Good Mommy When You're Sick Soon after receiving her Bachelor's Degree, Dr. Emily Graves was diagnosed with Rheumatoid Arthritis and given a prognosis that she would be confined to a wheelchair within ten years. Shortly thereafter, pregnant with her first and only child, Emily's kidneys shut down. Thus, began a new chapter in Emily's life: balancing chronic illness, motherhood, and the professional ambitions that had caused her to excel as an academic and meet her husband. Today she is still fighting chronic illness, but she has found some answers as to how to manage that fight while being a good mother and spouse and continuing to pursue her professional ambitions. In this

  ANGER needs to be verbalized and needs an outlet. Show me a caregiver who says he or she never gets angry, and I’ll show you a liar or a saint.  Once, a patient who was 75 years old came into my office. She had been caring for her 97-year-old mother for ten years. I told her I was a caregiver, too, and remarked that I thought caring for someone else when you were 75 must be most difficult. With a sheepish look on her face she said, “You know, I’m ashamed to tell you this, but sometimes I get very angry." I responded, “Of course you do; that’s only natural. I get angry, too.”  She looked astonished. “You do?” she said, “I thought I was the only one.” I couldn’t believe my ears. I assured her that most caregivers experience this strong emotion more often than they would like to admit. She was very happy and relieved to hear that.  There is no way you can keep from feeling angry about seeing your loved one suffering and about having acquired such tremendous responsibi

excerpt from Road Map to Power -  Chapter 5: Self-Focus and the Challenges of the Discontent Rule of the Road: Looking for security? It’s in the attachment. Mile Markers: Attachment, Self-Esteem, Self-Focus, Bullying, Celebrity Worship, Real vs. Ideal Self, Social Comparison, Keeping Up with the Joneses, Eating Disorders, Rosebud Four former high school chums, George, James, Phil, and Tom, meet for a highly anticipated reunion with their coach to celebrate past victories and relive previous triumphs. Sounds like a scene from any of a myriad of communities across the landscape of the United States. It is also the premise for Jason Miller’s play, That Championship Season, winner of Pulitzer and Tony awards. Originally debuting in 1972, the play was a rebuke of time-honored traditions and a challenge to many of the collective values held by society at large. Set in the coal mining town of Scranton, Pennsylvania, four star athletes return to the house of their former coach to share the la

  Today would have been the 54th anniversary for Carl  and me. Last year, I spent it in the cemetery with Carl, as I did the year before. This year I cannot because I am in Bandung, Indonesia, but perhaps that is just as well.  On our 51st, he was alive, but not well. Three weeks earlier, he had fallen, been xrayed, and found to be in the advanced stage of cancer of unknown primary , with liver, lungs, bones, and stomach completely riddled with cancer cells, blood clots in his lungs, and his bones throwing off cells to create hypercalcemia, the reason he had fallen. It was a difficult time. We were just coming out of the covid months. We brought our CHARGE Syndrome son CB who had been living in group homes for 20 years home when they were not careful with protection from covid. At the same time, our spina bifida daughter, who lives about 30 miles to the south of us, independently, with a county-provided part-time aide lost her caregiver to surgery and no one wanted to take over, given

This picture goes with maintaining a sense of independence and trying to help out the caregiver, especially when the caregiver is a family member and the cancer patient is still living at home (pre-hospice or on hospice -- although if put on hospice, chances are the patient has progressed to the point of not being able to assist with self-care), like my husband Carl was. Carl's push toward self-care was prompted by an unwillingness to talk about death (link to earlier post) and not wanting to admit that terminally ill (not necessarily good things because we had to scramble after he died to hack his accounts to take care of matters that could have been planned for -- but not just he but we, the whole family, were choosing to focus on life, not death . So, as a tinkerer, he came up with some home adaptations that could be helpful to anyone with reduced and reducing mobility. The picture above is the way in which he used towels to assist himself in getting up from the toilet once bei