The Story behind the Book: Living Well with Chronic Illness (Charnas)
Today's back story is about the book, Living Well with Chronic Illness by Joanna Charnas From the author: In the mid to late 1990s, I was particularly sick with Chronic Fatigue Syndrome, an illness I’d lived with since I was nineteen. During these years, I had several run-ins with large bureaucracies, including the Massachusetts Department of Motor Vehicles and Harvard Community Health Plan, the largest HMO in the state. After I’d successfully obtained the services I needed, I’d tell my father about these confrontations, carefully leaving the distress they’d caused me out of the narrative. My father repeatedly responded, “You ought to write about that.” I was a Social Worker for a large AIDS service organization at the time, and my reply was always, “My experiences aren’t unique. My clients often encounter these same problems.” We had some version of this conversation for a couple of years. At the same time, I had an otherworldly feeling I should be writing something. I’d been p