MSI Press Blog

  Excerpt from the pre-publication manuscript: Chapter 13 HOW DO WE USE OUR FREEDOM? “The only real prison is fear, and the only real freedom is freedom from fear.” --Aung San Suu Kyi   ·        When the lockdowns began in March 2020 to stop the spread of the Coronavirus, “to flatten the curve,” we were shocked at this drastic measure. It underlined the seriousness and deadliness of the pandemic. We imagined the shutdown opening after a brief time. My friends and I exchanged humor and cartoons to help us cope with the shock and avoid panic. (The joking has slowed, almost to a standstill.) One cartoon was prescient of a coming attitude and agenda shift. It was a cartoon of a smiling Jim Carrey saying, “Hope they allow us off lockdown by July 4 th …so we can celebrate our freedom.” ·        His humor carries a stinging truth. Disillusionment has set in on a national scale. The lockdown was eased, but COVID-19 cases rose and States are closing down businesses and gatherings again. We are

photo: care.com When Carl was dying from Cancer of Unknown Primary , we were facing the question of how to handle his 24/7 needs for care. Everything was compressed during that time -- decisions had to be made without the time to reasonably research them and rationally make them. (That is the primary reason MSI Press established Carl's Cancer Compendium : to pull together a lot of the basic, time-consuming research that could be accessed with just a couple of clicks).  When we decided to try chemotherapy, he became not eligible for hospice care. IMHO, there is a problem with the binary system behind hospice availability. Decide to work on dying - hospice is available. Decide to work on living -- you're on your own. Yet, this is exactly the time that patients and their families need help; being on your own is certain to result in a range of emotions, including anger and frustration, as well as poorly informed decisions, burnout from family member who cannot do everything and be

  Earlier, I wrote about the two paths that erupted in front us when faced with a late-stage cancer diagnosis: to focus on living or to focus on dying. There are so many problems and so much confusion when told after a fall or a blood test or something else that seems otherwise innocuous that your loved one has advanced stage 4 cancer.  The worst thing about a late-stage diagnosis is time, or the lack thereof. Not just the time left for a cancer victim to live, but the time available to make decisions.  The first decision--to treat or go on hospice --is a significant one, and there is often no time to really think in through. From my own experience with more than one relative diagnosed with more than one kind of cancer at an advanced stage, there is an automatic, nearly instinctive choice made, not a reasoned one. Got insurance? Treat the cancer. Don't have insurance? Don't treat the cancer. Those are clearly not the most logical or even medically best or viable criteria, but

MSI Press, over the years, has published a number of books that focus on cancer, include cancer, or discuss related items such as living with chronic illness, caregiving, dying, and grief. Here are some of them. All of these books can be found on the MSI Press website  HERE .                 For more Cancer Diary posts, click HERE . To reach the MSI Press catalogue, click HERE . Note that the coupon code FF25 will gain you a 25% discount on any book, including those on sale. Blog editor's note: As a memorial to Carl, and simply because it is truly needed, MSI  is now hosting a web page,  Carl's Cancer Compendium , as a one-stop starting point for all things cancer, to make it easier for those with cancer to find answers to questions that can otherwise take hours to track down on the Internet and/or from professionals. The web page is in its infancy but expected to expand into robustness. As part of this effort, each week, on Monday, this blog will carry an informative, cancer-r

  When Carl lay dying in home hospice, we were given three vials of morphine for pain. Oddly, we used very little of it. He did not need or want it. At one point, his liver was grieving him, and we gave him a small amount and called the hospice to find out what we should be giving since the bottle said only "as needed." We were told that we had given a pediatric dose -- for a 300-pound man. He did not seem to need more at that time, though, but the next couple of days, a couple of times, he indicated he was in mild pain, and we tripled the dose as suggested by the nurse. He, however, after that, never indicated he was in pain. Our son asked if he might like to be given at least a small dosage prophylactically, to which he responded, "You wanna turn me into a dope addict?" Carl had a limited tolerance for pain all his life, so if he said he was not in pain, he was indeed not in pain. Had he been in pain, he would have taken anything and everything available!  The opp

Whether you call it Anointing of the sick, Sacrament of Extreme Unction, or Last Rites, the ceremony of a priest spending time at the end of a dying (from cancer or anything else) parishioner's life can bring peace to family and friends. I am pretty certain that Carl held on until that happened. He was mostly in some other world, not comatose but not present to those around him either, during his last couple of days. He had all the signs of being in the last hours (not days) of life but seemed to hold on. He knew our priest would come on Sunday morning.  On Sunday morning, I alerted the priest to the near-comatose state of Carl. He responded, "We will take him as he is."  However, the minute he spoke Carl's name, Carl's eyes flew open, and he smiled, responding with cheer and apparent happiness, "Oh, hi!" Carl surprisingly followed the rite although it was clearly difficult for him at times to fight to stay in the present. However, that is clearly where

Somehow, some way, it appears that animals know a lot more about death (and when it is coming) than we do.  When Murjan was approaching death , in fact, just the day before, he begged to go out on his leash for a walk. That cat always seemed to think he was actually a dog--and how he loved to go for walks! Saturday's walk was very different from his past walks, however. He kept exploring dark places, especially little cave-like areas, as if looking for a place to take a final rest. He never did that before. That spooked me a little because he seemed to be telling me that he was dying--and he was. He passed away within 24 hours of that walk. So, it should not have been surprising that when Carl was dying, he was surrounded by the cats who loved him. They spent all day and all night of that last 24 hours with him--under the footrest, on the footrest, and lying on him. They clearly knew. Check out MSI Press's books on cancer and related to cancer HERE . For more posts on Carl Leav

  What some people leave behind when they die can help so many others -- either making  medical care possible for them or making medical care better for them.  In the first category is a young mother (age 38) who died of ovarian cancer. Her name was Casey Ryan MacIntyre, and her dying wish was to wipe out the medical debts of other people. Through a memorial page on the  RIP Medica Debt page, she, with the help of her survivors, has already wiped out over 100 million dollars in debt of those who cannot afford medical care. (Donations are still being solicited -- until December, it appears -- if you would like to donate.) Newsweek tells the story HERE . In the second category are those who donate organs. For the most part, the process for doing that is easy to follow; hospitals have staff members who follow up on those who have indicated they wish to donate (e.g., on their driver licenses) or through those they leave behind and will often contact the latter whether or not there a wish