MSI Press Blog

  April Fool’s Day has been around for centuries, though no one can quite agree on where it began. Some trace it to the 16th‑century switch from the Julian to the Gregorian calendar, when people who still celebrated New Year’s in late March were teased as “April fools.” Others point to spring festivals across cultures—times of playful chaos, role‑reversal, and harmless trickery. However it started, the spirit has stayed the same: one day each year when the world gives you permission to be delightfully ridiculous. In our house, though, April Fool’s Day doesn’t just happen . It is anticipated. It is engineered. It is practically a season. And the reason is simple: my son Shenan. Shenan is a prankster by nature and by name. He even owns a shirt that reads, “If I Shenan once, I’ll shenanigan.” This is not an idle threat. This is a personal mission statement. So it’s no surprise that April Fool’s Day is his favorite holiday. While most people start thinking about jokes on March 31...

Most people haven’t heard of CHARGE Syndrome (including doctors who say, "This is my first patient with CHARGE")— and that’s part of the challenge. CHARGE syndrome is a rare genetic condition , affecting roughly 1 in 10,000 births . It’s complex, lifelong, and looks different for every person who has it. The name CHARGE comes from a pattern of medical features that can include differences in the heart, hearing, vision, breathing, growth, balance, and development . Because CHARGE is so rare, finding knowledgeable medical support can be incredibly hard — especially for families living in rural or remote areas . Many parents spend years educating doctors, coordinating dozens of specialists, and traveling long distances just to access basic care. Finding trained caregivers, therapists, or educators who truly understand CHARGE can feel nearly impossible. And CHARGE doesn’t end with childhood. Across a lifetime, individuals with CHARGE may face: Multiple surgeries and ong...

  Today, February 28, 2025,* marks Rare Disease Day, an international observance dedicated to raising awareness about rare diseases and their impact on patients' lives. Among these conditions is CHARGE Syndrome, a complex genetic disorder that affects approximately 1 in 10,000 births worldwide. The acronym CHARGE stands for Coloboma, Heart defects, Atresia choanae, Restricted growth and development, Genital abnormalities, and Ear abnormalities - reflecting the multiple systems affected by this condition. What makes this Rare Disease Day particularly noteworthy is the ongoing contribution of Shenan Leaver, believed to be the oldest living person with CHARGE Syndrome in the world. Despite facing numerous medical challenges throughout his life, Leaver has defied expectations by not only surviving but thriving as an author. His resilience exemplifies the potential for individuals with rare conditions to lead fulfilling lives when provided with proper support and opportunities. Leaver...

  Today's back story is about the book, Mommy Poisoned Our House Guest  by Shenan (CB) Leaver with Betty Lou Leaver. From the co-author: CB Leaver , the author, is a mentally challenged CHARGE Syndrome adult who never learned to read or write. His mother, Betty Lou Leaver, a highly published author, who wanted her son to understand the purpose of the written word: sharing thoughts and/or information with others. It took a full year of working together to put CB's remembered stories on paper, to check that they had been accurately transcribed. CB learned a lot about the written word both in the process of writing and in getting feedback from pre-publication readers of the manuscript. CB subsequently did a book signing at the Los Angeles Book Fair. He had a great time learning about reader reactions to his book. He was also adept at using his people skills and humor to draw readers to his booth.  Book available at 25% discount with code FF25 at msipress.com/shop. Read exce...

  Excerpt from Mommy Poisoned Our House Guest (CB Leaver) - The Man in Our Dumpster When I was growing up, Daddy, Mommy, and all of us kids (sometimes we were four, sometimes we were six or seven) lived in a big house with 13 rooms in Salinas, California. When we finished growing up, Daddy got a hankering for the forest and Mommy got a hankering to give up cleaning 13 rooms all the time. So, they decided to buy an RV, travel when they could, and park it in the riverside woods of Arroyo Seco at other times where they lived comfortably and Mommy enjoyed a daily dip in the river. Moving out of 13 rooms was big business. Daddy and Mommy had quite a list of things to do: cleaning, giving away or selling stuff that would not fit in the RV, packing things to take with them, throwing away trash, and lots of other things (like changing addresses with businesses and the post office). One day when Daddy was out doing the lots of other things, Mommy held a yard sale. One of the people w...