MSI Press Blog

  Shenan (CB) Leaver, author of Mommy Poisoned Our House Guest , was recently interviewed by the Mission Village Voice , where his book is being serialized. From the MVV introduction to the column: "Mommy Poisoned Our House Guest is collection of anecdotes about a 'detail-oblivious' homemaker and traveler, told from the point of view of CB, her mentally challenged son. The simplicity of language has made this book a favorite with ESL students, and the humorous 'conclusion' about life from a child's point of view endears it to anyone with a sense of humor. The reason CB's mother worked with him to write the book was to teach him the impact of literacy -- why people write and why people read. Even though it has been impossible for him to learn to read and write very much, through the joint preparation of the book he did learn a lot about literacy. CB is a 42-year-old CHARGE Syndrome, on of about 4-5 worldwide his age. He was given 0% chance of living, dispro...

  Carl Leaver , to whom Cancer Diary and the CCC are dedicated, has a lookalike son. Their interests and behaviors are essentially the same. Carl's son CB has his same build -- except that he is a foot shorter, part of the CHARGE Syndome with which he was born. Carl died of Cancer of Unknown Primary; however, his oncologist believed (gut instinct plus experience) that it started in the colon. Carl could have had regular colonoscopies, but he foolishly chose not to because he was super-healthy. (The only time he was sick enough to vomit was one day when he was 21.) Unfortunately, he died super-healthy. Never vomited again, ever. Never felt sick until cancer wore out his energy and his muscles and then his thinking capacity. So, lesson learned? CB gets regular colonoscopies? His siblings do, and his brother has had some polyps removed. CB, however, cannot. As his gastroenterologist says, as a result of CHARGE Syndrome, CB has a 35% chance of dying from any procedure that requires int...

  Today's back story is about the book, Mommy Poisoned Our House Guest  by Shenan (CB) Leaver with Betty Lou Leaver. From the co-author: CB Leaver , the author, is a mentally challenged CHARGE Syndrome adult who never learned to read or write. His mother, Betty Lou Leaver, a highly published author, who wanted her son to understand the purpose of the written word: sharing thoughts and/or information with others. It took a full year of working together to put CB's remembered stories on paper, to check that they had been accurately transcribed. CB learned a lot about the written word both in the process of writing and in getting feedback from pre-publication readers of the manuscript. CB subsequently did a book signing at the Los Angeles Book Fair. He had a great time learning about reader reactions to his book. He was also adept at using his people skills and humor to draw readers to his booth.  Book available at 25% discount with code FF25 at msipress.com/shop. Read exce...

  (photo from last year, in anticipation of changing that number this evening from 41 to 42) November 13 today is CB Leaver's birthday. CB is the MSI Press author of the popular Mommy Poisoned Our House Guest and one of the oldest CHARGE Syndrome adults in the world. He knows only three others world-wide (Ohio, Massachusetts, and Netherlands) who have reached his age of 42 years (one is actually 45, the others are 42, as well) but thinks there may be another one or two somewhere. It is no mere feat, then, that he has survived, and robustly so, after a very tenuous start in life in which he as given 0% chance of survival by well respected doctors at Children's Hospital of Pittsburgh and rescued by doctors at Children's Hospital in Boston, Cincinnati Children's Hospital, Children's National Medical Center, Georgetown University Hospital, and Stanford Children's Medical Center -- it took a countrywide network to turn that 0% into 100%) and no mere feat also that ...

  Rare Disease Day is an observance held on the last day of February to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare disease. Rare Disease Day is meaningful for MSI Press since one of its authors, Shenan (CB) Leaver suffers from CHARGE Syndrome. CHARGE is so rare that he is one of only a handful of survivors in his age group worldwide -- he has personally found four besides himself! CHARGE Syndrome is a disorder that affects many areas of the body. CHARGE is an abbreviation for several of the features common in the disorder: coloboma, heart defects, atresia choanae (also known as choanal atresia), growth retardation, genital abnormalities, and ear abnormalities. The pattern of malformations varies among individuals with this disorder, and the multiple health problems can be life-threatening in infancy. When CB was born 42 years ago, CHARGE was not even known! Now, 70% of children born with CHARGE make it to ...

Shenan (CB) Leaver has attended special education classes in Virginia, California, and Ohio and graduated from Hayes High School in Delaware, Ohio, where he was voted “class flirt.” A parishioner at the San Benedict (in the background) parish, he now lives in Hollister in San Benito County, California and works at a sheltered workshop, M&M, where he has many friends who like to listen to his tall tales, most of whichS are based on true stories, funny things that happen to one relative or another — or to him.     He has written a very special and very funny book about his mother,   Mommy Poisoned Our House Guest   (yes, true story). Stand by for edition 3, currently in the making. CB is also working on a similar volume about his father, tentatively titled   Daddy Waited . Shenan loves to receive email from readers! For more imformation on CB and his work, click HERE .

  Temper tantrums. Whether you're navigating your toddler's grocery-store meltdown or managing a child whose frustration has hit peak volume during bedtime, tantrums can feel like the emotional equivalent of walking barefoot across Legos. It’s in these loud, chaotic, soul-draining moments that we parents are asked to summon something superhuman: calm. Franki Bagdade’s award-winning parenting guide,  I Love My Kids, But I Don’t Always Like Them , doesn’t offer a fairy tale version of parenting—it delivers real talk for real life. With a career in behavioral observation and a deeply personal understanding of parenting exhaustion, Franki meets parents where they are: frazzled, burned out, and wondering what on earth just happened. The book is refreshingly honest, peppered with humor, and built on hard-earned wisdom. Franki’s stories and strategies help parents stay grounded, even when their child’s emotions are spinning out like a top in a tornado. Her approach is not about perfe...

  Temper tantrums. Whether you're navigating your toddler's grocery-store meltdown or managing a child whose frustration has hit peak volume during bedtime, tantrums can feel like the emotional equivalent of walking barefoot across Legos. It’s in these loud, chaotic, soul-draining moments that we parents are asked to summon something superhuman: calm. Franki Bagdade’s award-winning parenting guide,  I Love My Kids, But I Don’t Always Like Them , doesn’t offer a fairy tale version of parenting—it delivers real talk for real life. With a career in behavioral observation and a deeply personal understanding of parenting exhaustion, Franki meets parents where they are: frazzled, burned out, and wondering what on earth just happened. The book is refreshingly honest, peppered with humor, and built on hard-earned wisdom. Franki’s stories and strategies help parents stay grounded, even when their child’s emotions are spinning out like a top in a tornado. Her approach is not about perfe...