Precerpt from Raising God's Rainbow Makers: Doah Expects Me to Fix Everything! Really!
Doah is, by nature, a remarkably robust person. He almost never complains. People who know him well often remark on how much discomfort he tolerates without a word. But there is one situation where his patience vanishes instantly: when he cannot breathe well. Doah has sensory overload, something first identified by his pediatrician, T. Berry Brazelton, during our Boston Children’s Hospital stay in 1980. Most of the time it sits quietly in the background of his life. But when he is sick— especially with something like bronchitis— and breathing becomes difficult, the overload can come quickly. And when it does, patience disappears. The echoes of his earlier airway struggles— the tracheotomy and the subglottic stenosis— are never very far away. Add depleted oxygen levels to the mix ( he is on oxygen 24/ 7 now), and even a routine respiratory illness can push his system past its tolerance point. When that happens, Doah does not wait politely. He demands that I fix the problem. ...