MSI Press Blog

Shenan (CB) Leaver has attended special education classes in Virginia, California, and Ohio and graduated from Hayes High School in Delaware, Ohio, where he was voted “class flirt.” A parishioner at the San Benedict (in the background) parish, he now lives in Hollister in San Benito County, California and works at a sheltered workshop, M&M, where he has many friends who like to listen to his tall tales, most of whichS are based on true stories, funny things that happen to one relative or another — or to him.     He has written a very special and very funny book about his mother,   Mommy Poisoned Our House Guest   (yes, true story). Stand by for edition 3, currently in the making. CB is also working on a similar volume about his father, tentatively titled   Daddy Waited . Shenan loves to receive email from readers! For more imformation on CB and his work, click HERE .

  Today, February 28, 2025,* marks Rare Disease Day, an international observance dedicated to raising awareness about rare diseases and their impact on patients' lives. Among these conditions is CHARGE Syndrome, a complex genetic disorder that affects approximately 1 in 10,000 births worldwide. The acronym CHARGE stands for Coloboma, Heart defects, Atresia choanae, Restricted growth and development, Genital abnormalities, and Ear abnormalities - reflecting the multiple systems affected by this condition. What makes this Rare Disease Day particularly noteworthy is the ongoing contribution of Shenan Leaver, believed to be the oldest living person with CHARGE Syndrome in the world. Despite facing numerous medical challenges throughout his life, Leaver has defied expectations by not only surviving but thriving as an author. His resilience exemplifies the potential for individuals with rare conditions to lead fulfilling lives when provided with proper support and opportunities. Leaver...

  Shenan (CB) Leaver, author of Mommy Poisoned Our House Guest , was recently interviewed by the Mission Village Voice , where his book is being serialized. From the MVV introduction to the column: "Mommy Poisoned Our House Guest is collection of anecdotes about a 'detail-oblivious' homemaker and traveler, told from the point of view of CB, her mentally challenged son. The simplicity of language has made this book a favorite with ESL students, and the humorous 'conclusion' about life from a child's point of view endears it to anyone with a sense of humor. The reason CB's mother worked with him to write the book was to teach him the impact of literacy -- why people write and why people read. Even though it has been impossible for him to learn to read and write very much, through the joint preparation of the book he did learn a lot about literacy. CB is a 42-year-old CHARGE Syndrome, on of about 4-5 worldwide his age. He was given 0% chance of living, dispro...

  Today's fortune cookie is associated with Mommy Poisoned Our House Guest (Leaver).  Read more about the Shenan Leaver and his book HERE . Currently on sale for $5 at MSI Press webstore .cookie, Mommy Poisoned Our House Guest, Shenan Leaver Sign up for the MSI Press LLC newsletter Follow MSI Press on  Twitter ,  Face Book , and  Instagram .   Interested in publishing with MSI Press LLC? Check out information on  how to submit a proposal . Interested in receiving a free copy of this or any MSI Press LLC book  in exchange for  reviewing  a current or forthcoming MSI Press LLC book? Contact editor@msipress.com. Want an  author-signed copy  of this book? Purchase the book at 25% discount (use coupon code FF25) and concurrently send a written request to orders@msipress.com.  Want to communicate with one of our authors? You can! Find their contact information on our  Authors' Pages .    

  MSI Press authors, Sula Parish Cat and Shenan (CB) Leaver, at Old Mission San Juan Bautista Gift Shop office Sula, Parish Cat at Old Mission, has written seven books, the most recent one, Sula and the Franciscan Sisters , released this month. Today, KSBW in Salinas, California featured Sula, her passing, and parishioner response -- along with quite a surprise at the first Mass after her passing. Listen to it HERE . For more posts about Sula and her books, click HERE For posts about Shenan and his book, click HERE .                                    Sign up for the MSI Press LLC newsletter                           Follow MSI Press on  Twitter ,  Face Book , and  Instagram .

Most people haven’t heard of CHARGE Syndrome (including doctors who say, "This is my first patient with CHARGE")— and that’s part of the challenge. CHARGE syndrome is a rare genetic condition , affecting roughly 1 in 10,000 births . It’s complex, lifelong, and looks different for every person who has it. The name CHARGE comes from a pattern of medical features that can include differences in the heart, hearing, vision, breathing, growth, balance, and development . Because CHARGE is so rare, finding knowledgeable medical support can be incredibly hard — especially for families living in rural or remote areas . Many parents spend years educating doctors, coordinating dozens of specialists, and traveling long distances just to access basic care. Finding trained caregivers, therapists, or educators who truly understand CHARGE can feel nearly impossible. And CHARGE doesn’t end with childhood. Across a lifetime, individuals with CHARGE may face: Multiple surgeries and ong...

  Most people haven’t heard of CHARGE Syndrome (including doctors who say, "This is my first patient with CHARGE")— and that’s part of the challenge. CHARGE syndrome is a  rare genetic condition , affecting roughly  1 in 10,000 births . It’s complex, lifelong, and looks different for every person who has it. The name  CHARGE  comes from a pattern of medical features that can include differences in the  heart, hearing, vision, breathing, growth, balance, and development . Because CHARGE is so rare,  finding knowledgeable medical support can be incredibly hard  — especially for families living in  rural or remote areas . Many parents spend years educating doctors, coordinating dozens of specialists, and traveling long distances just to access basic care. Finding trained caregivers, therapists, or educators who truly understand CHARGE can feel nearly impossible. And CHARGE doesn’t end with childhood. Across a lifetime, individuals with CHARGE ma...